All is Still Well

Things are still going well here with Maria! Her vision and hearing seem to continue improving. She seems to look at us more often. Sue, the nanny, is so excited everyday because she's doing so well. Next week we have another barium swallow to see if she's aspirating, and a visit to the nutritionist and gastroenterologist (the one who can't believe Maria's drinking a bottle again).

Like Uncle Andy said, we had a real nice time with Auntie Rose and Uncle Paul. Maria is such a good vacationer (just like her mom!). I was a bit nervous on the sail boat, the wind was pretty strong and the boat was tipping quite a bit. It would've been a yahoo good time, but I kept thinking about what would happen with Maria if the boat tipped over.

We looked at all the MRI CDs I have - Sept and Dec '04, Apr and Aug '05. It's amazing how good Maria's brain looks now compared to last Sept. Each scan looks quite a bit better than the one before it. The last one looks normal (to an untrained eye). How many of you can say you've seen your daughter's brain?

Got the report on Maria's hearing test. Highlights: "Abnormal synchrony of the auditory pathway for both ears." "Possibility of normal cochlear function and an auditory neuropathy." "Interesting and unusual activity in the tone bursts that occurs very early and is quite robust." "Appears to shift in latency as the pitch changes." "Further investigation will be done to get a better understanding of the nature & significance of this activity." "Cochlear implant shouldn't be considered at this time."

Well, we seem to be training Maria to be very vocal at night resulting in mom going to bed early so daughter can sleep. In other words, sweet as she is, I think we're creating a monster...